Ensuring that all people impacted by cancer have access to the emotional wellness and mental health resources and tools they need throughout the cancer continuum is a critical part of comprehensive cancer care.
As part of our commitment to putting patients first and the center of everything we do, BeiGene is pleased to share a list of resources provided by patient advocacy groups that offer a variety of services to support patients, survivors, and caregivers.
These organizations are on the front lines every day supporting patients and caregivers as they navigate their physical and emotional needs related to cancer. From hosting support groups to providing one-to-one counseling services to offering innovative wellness programs and activities, the organizations listed below are true advocates and partners for all people impacted by cancer.
Cancer Support Helpline The Cancer Support Helpline is staffed by compassionate licensed and experienced healthcare professionals that provide free guidance, resources and support to cancer patients or their loved ones with a variety of needs—from getting information about cancer, identifying a local support group or just finding someone who is willing to listen. The Helpline’s team also includes specialized navigators who are trained in assisting people with finances, clinical trials, genetics/genomics, pediatric oncology and more. Call 1-888-793-9355
MyLifeLine Online Community MyLifeLine is CSC’s online support community that connects cancer patients and caregivers with friends and family in order to reduce stress, anxiety and isolation. Members can create their own private website and set up helping calendars. They can also participate in discussion boards to connect with others going through similar experiences and share experiences and offer insights, coping strategies and inspiration.
Find a Local Cancer Support Community or Gilda’s Club With over 175 locations worldwide, you can find support groups, yoga classes, and educational workshops. Emotional and social support opportunities are provided for every age group and life situation, including children, teen, and families affected by cancer. Best of all, our programs are offered at no cost to anyone impacted by a cancer diagnosis.
Frankly Speaking About Cancer information on:
- Coping with Cancer
- Emotional Health & Well-being, including:
- Managing Stress from Cancer
- Managing Fear from Cancer
- Fact Sheets on Feeling Lonely or Isolated, Feeling Nervous or Afraid, Worry about the Future, Feeling Sad or Depressed
- Cancer Caregiver Support
- Caregiver Booklet
- Fact Sheet on Providing Emotional Support to Your Loved One with Cancer
Information Specialists Speak one-on-one with an Information Specialist (highly trained oncology social workers or nurses) who can assist you through cancer treatment, and financial and social challenges and give accurate, up-to-date disease, treatment and support information.
Online Chats Weekly online chats to provide opportunities for patients and caregivers to share their experiences and connect with others. Available online chats currently include Acute Leukemia, Caregivers, Chronic Lymphocytic Leukemia, Chronic Myeloid Leukemia, COVID-19, Myelodysplastic Syndromes, Myeloma, Non-Hodgkin Lymphoma and Young Adults. All chats are moderated and led by oncology social workers.
Patti Robinson Kaufman First Connection Program This free, one-on-one peer support network connects patients and loved ones to trained volunteers with similar experiences. The service is available for those residing in the United States or Canada.
Family Support Groups There are currently 130 local groups, with the number of groups growing each year. Groups generally meet once a month. Groups are staffed by two credentialed health and mental health professionals with extensive oncology experience. Family Support Groups can be found by finding and contacting a local LLS Region.
Managing Stress How Stress Affects You and Ways to Cope booklet
LLS CommunityLLS Community is an online gathering place for patients, caregivers and healthcare professionals to share experiences and provide support. In addition, LLS provides information and resources to support patients and caregivers from diagnosis and throughout the cancer journey.
The HealthWell Foundation is a nationally recognized 501(c)(3) organization dedicated to improving access to health care for America’s underinsured. HealthWell operates over 85 disease specific funds, five of which have a behavioral health component, including our Cancer-Related Behavioral Health Fund.
Cancer-Related Behavioral Health Fund Assists individuals in need of cancer-related behavioral health treatments. The Fund provides financial assistance to individuals with a cancer diagnosis to help with cost-shares for covered services and drug therapies prescribed by behavioral health providers (psychiatrists, psychologists, and licensed social workers).
Support Groups CLL Society offers 40 CLL-specific support groups across the United States and Canada under the care and guidance of CLL Society-trained facilitators. A Support Group Calendar is available on the website where patients and caregivers can find and register for upcoming meetings.
Mental Health Education Access a variety of educational webinars and articles on mental and physical health topics, including diet and exercise, mindfulness and stress reduction, combatting isolation, and caregiver support.
Speak to an Oncology Social Worker Licensed professional oncology social workers are available to provide free individual and support group counseling to patients and caregivers in New York and New Jersey. Counseling is available in English and Spanish.
Hopeline (phone number) 800-813-HOPE
Staffed by master's-prepared oncology social workers, CancerCare's Hopeline is the first step to accessing our resource navigation, counseling, support groups, educational workshops and financial assistance for people living with cancer, caregivers and the bereaved. Services are available in English and Spanish to people in the United States, including US territories. Call 800-813-HOPE (4673).
Resource Navigation Professional resource navigators and oncology social workers provide resource navigation services to help you better cope with cancer.
Online or Live Support Groups CancerCare offers both online support groups using a password-protected message board and live support groups in New York and New Jersey through video conference. All support groups are monitored and/or facilitated by licensed oncology social workers.
Publications/Fact Sheets Easy-to-read booklets and fact sheets that provide reliable information on cancer-related topics.
Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.
One-on-One Support Trained staff (licensed social workers and employment experts) meet individually with patients, survivors, caregivers, managers and more to provide support, guidance and referrals on all aspects of managing work—or looking for work—after a diagnosis. Available in English and Spanish.
Balancing Work & Cancer Webinars This 12-part virtual series covers a wide range of topics related to navigating work after a cancer diagnosis, including setting boundaries, decision-making, self-care, managing stress, building confidence and communication techniques to support difficult workplace conversations. Sessions are presented by career experts, mental health professionals, attorneys, nutritionists and more.
Direct ServicesA variety of program offerings that give patients and survivors direct access to tools, services and support all free-of-charge.
IWMF is a patient-founded and patient-driven, nonprofit organization that is dedicated to supporting and educating everyone affected by Waldenstrom’s macroglobulinemia (WM) while advancing the search for a cure.
Lifeline and One-on-One SupportA volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions.
Support for CaregiversA resource area for WM caregivers.
Support GroupsThe IWMF, with its International Affiliates, has over 60 Support Groups worldwide, including groups throughout the US, in Argentina, Australia, Canada, many countries in Europe, India, Mexico and Taiwan.
Disease Funds As an independent, national 501(c)(3) organization, the PAN Foundation is dedicated to helping federally and commercially insured people living with life-threatening, chronic, and rare diseases afford their out-of-pocket prescription medication costs. PAN provides financial assistance to eligible patients across nearly 70 disease funds—including various types of cancer and mental health conditions.
Alliance PartnersPAN also recognizes the importance of providing more than just financial assistance. That’s why PAN partners with leading, national nonprofit organizations to provide disease-specific education, emotional support, and other support services to patients. PAN currently has 25 alliance partners—including the Bladder Cancer Advocacy Network, the Colorectal Cancer Alliance, Melanoma Research Foundation, Prostate Cancer Research Institute, and SHARE.
Mental/Behavioral Health Organizations & Resources
National Council for Mental Wellbeing – they guide mental health first aid training